Nystagmus Network
Nystagmus Network
Physical and Sensory Impairment
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
How to Find Us
Costs and Booking Information
Cost Information:
No costs.
Group Information
Coverages:
All of Dudley Borough
Target Audiences:
Young People
Support Groups:
Visual impairment
Notes
Referral Notes:
We support all age groups especially young people and children and their carers.
Organiser:
Nystagmus Network
Telephone:
01427 718093
Website:
Nystagmus Network
Email:
info@nystagmusnet.org
Address:
70 Hyde Vale, LONDON, SE10 8HP
Service Information
Categories:
Physical and Sensory Impairment, Self Help/Support Groups
Links for Information
Website:
Nystagmus Network
Facebook:
Nystagmus Network
Twitter:
NystagmusUK
Instagram:
Nystagmus Network
Last updated 15th Jun 2023